Personal and family background

Documentation of the patient's personal and family background

Outdated
Language Designation Definition
EN Personal and family background Documentation of the patient's personal and family background
DE Persönlicher und familiärer Hintergrund Dokumentation des persönlichen und familiären Hintergrunds des*der Patient*in

Members and subgroups

Affected children urn:osse-46:record:14:1 Details about the affected children.
Affected siblings urn:osse-46:record:12:1 Details about the affected sibling(s).
Age urn:osse-46:dataelement:21:4 Please indicate the sibling's age at the time of inclusion in the NARSE.
Age urn:osse-46:dataelement:86:1 Please indicate the child's age at the time of inclusion in the NARSE.
Age group urn:osse-46:dataelement:84:1 Please indicate the age group at inclusion in NARSE.
Age of father urn:osse-46:dataelement:19:2 Please indicate the father's age the time of inclusion in the NARSE.
Age of mother urn:osse-46:dataelement:18:2 Please indicate the mother's age at the time of inclusion in the NARSE.
Children affected by this RD urn:osse-46:dataelement:87:1 Please indicate if any of the patient's children are affected by this rare disease (if applicable)
Date of death urn:osse-46:dataelement:52:2 Please indicate the patient's date of death.
Died of RD urn:osse-46:dataelement:70:2 Please indicate whether the patient died of the rare disease.
Father affected by this RD urn:osse-46:dataelement:73:1 Please indicate if the father is affected by this rare disease.
Father deceased urn:osse-46:dataelement:74:1 Please indicate if the father is deceased.
Father's age at death urn:osse-46:dataelement:59:1 Please indicate the father's age at death.
Mother affected by this RD urn:osse-46:dataelement:71:1 Please indicate if the mother is affected by this rare disease.
Mother deceased urn:osse-46:dataelement:72:1 Please indicate if the motheris deceased.
Mother's age at death urn:osse-46:dataelement:58:1 Please indicate the mother's age at death.
Other cause of death urn:osse-46:dataelement:15:2 Please indicate other cause of death.
Patient status urn:osse-46:dataelement:55:3 Please select the patient's current status.
Patient's age at death urn:osse-46:dataelement:83:1 Please indicate the patient's age at death in years.
Sex urn:osse-46:dataelement:85:1 Please indicate the child's sex.
Sex urn:osse-46:dataelement:69:1 Please indicate the sibling's sex.
Sex urn:osse-46:dataelement:68:1 Please indicate the patient's sex at birth.
Siblings affected by this RD urn:osse-46:dataelement:75:1 Please indicate if any siblings are affected by this rare disease.